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Arthrogryposis Multiplex Congenita Awareness Day - Light Up BLUE!

  • BOMA Philadelphia 1515 Market Street Philadelphia, PA, 19102 United States (map)

OUR MISSION: To provide and encourage more understanding & mutual support among anyone diagnosed with Arthrogryposis Multiplex Congenita (AMC). There are over 400 different versions of AMC & 1 in 3,000 are born with this condition. 

To create a higher standard of AMC Awareness by means of conferences (this year is our 18th Annual AMCSI Conference), meetings, studies, & provide medical information to families with AMC or their children with grants, scholarships & more!

BRIEF NONPROFIT HISTORY:  Ani Samargian (whose daughter has AMC) created www.amcsupport.org, an online AMC support group because there was very little information available to families due to the rare occurrence of AMC. The interest & activity of the online support group grew & blossomed; from the original 30 members, membership has continued growing to over 400 families.

AMCsupport.org brought families together for The First Annual AMC Conference, a real-world gathering in Chicago, Illinois, during the summer of 2006. A second Conference held in Arlington, Texas, in July 2007 brought even more families together. With the help of an army of volunteers, and the generous contributions of Roland Pieper, an attorney whose granddaughter has arthrogryposis, a Board of Directors was created, & work began on the daunting process of becoming a non-profit corporation & on September 7, 2007,, Arthrogryposis Multiplex Congenita Support, Inc. was granted non-profit status as a  501 (C) (3) Corporation.

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June 28

Community Is Stronger Than Cancer Day! Light Up - RED, MAROON, WHITE

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July 10

Chronic Disease Day - LIGHT UP ORANGE AND WHITE