Back to All Events

Neurofibromatosis Type 1 Awareness Month - Light up PINK

  • BOMA Philadelphia 1515 Market Street Philadelphia, PA, 19102 United States (map)

The Magical Mila Foundation — a non profit started in 2019 in memory of Jessica Roomberg’s 17-month-old daughter, Mila, who passed away suddenly after an emergency surgery she needed to save her life. 

Mila had Neurofibromatosis Type 1 — a genetic disorder that can cause a slew of symptoms including vascular conditions leading to high blood pressure. NF1 does not run in her family. Since her passing we have raised $650,000 and funded a successful clinical trial at Children’s Hospital of Philadelphia. You can learn more here:

www.magicalmilafoundation.org

Previous
Previous
May 20

GBS and CIDP Awareness Month - Light up BLUE and/or GREEN!

Next
Next
May 31

Light up for PRIDE MONTH!